Prayers Please

Prays for both you and the little one! I hate seeing anything happening with a child!
 
I too am glad for the great news. We did not have much information at first, just that her blood iron levels were low. That information alone opens the possibility for this to have been caused by something much worse. We're incredibly thankful that it was something so easy to correct.

She responded great to the first transfusion, almost close enough to release, so the doctors felt very confident that it was nothing more major.
 
I too am glad for the great news. We did not have much information at first, just that her blood iron levels were low. That information alone opens the possibility for this to have been caused by something much worse. We're incredibly thankful that it was something so easy to correct.

She responded great to the first transfusion, almost close enough to release, so the doctors felt very confident that it was nothing more major.
I know how it felt when the possibly of something worse was not yet removed from consideration. My son developed lymphocitic anemia when he was 16.
Google that and the first thing that come up is leukemia. Turned out that was the earliest symptom of Crohn's. Imagine being grateful it was Crohn's. Better than cancer. They still monitored him at the Greensboro Cancer center for over a year to be sure.
As for milk, check out the ultra-filtered milk. More expensive than regular milk but doesn't have the phytoestrogen that soy milk has.
 
I know how it felt when the possibly of something worse was not yet removed from consideration. My son developed lymphocitic anemia when he was 16.
Google that and the first thing that come up is leukemia. Turned out that was the earliest symptom of Crohn's. Imagine being grateful it was Crohn's. Better than cancer. They still monitored him at the Greensboro Cancer center for over a year to be sure.
As for milk, check out the ultra-filtered milk. More expensive than regular milk but doesn't have the phytoestrogen that soy milk has.

EVERYTHING, and I mean everything else falls away and it is only that one thing you focus on. For those first 24 hours, that was all I could think of. For that brief instance in time, my whole world stopped.

For all new parents out there, do not Google any symptoms, because all you're going to get back in the search results are that it is cancer. We had no information until the ER doctor did their initial evaluation, and after that, we knew it wasn't serious.
 
Today's check-up was the first where her red blood cells should have indicated whether or not her body could keep up, as all the blood from the transfusions should have been replaced by now.

I'm pleased to report her numbers are looking great and doctors are recommending that she stop taking the iron supplements.

Further study of her blood and background has identified that an antibiotic may have been signaling for her marrow to stop producing red blood cells. She was born with a duplicated collection system on her right kidney. Two ureters attached to the kidney, where there should have only been one, and the upper pole of the right kidney was developing like a completely separate kidney. During that diagnosis, it was identified that she had a ureter seal, which had to be perforated to allow her bladder to function normally. This surgery was conducted while she was 2-weeks old. Since that surgery, and up until she was about a year and a half old, she was on Bactrim, an antibiotic to prevent kidney infections, if complications arose from the surgery on the ureter seal.

That antibiotic, in combination with too much milk, suppressed her body's ability to produce and absorb iron from her diet.
 
Today's check-up was the first where her red blood cells should have indicated whether or not her body could keep up, as all the blood from the transfusions should have been replaced by now.

I'm pleased to report her numbers are looking great and doctors are recommending that she stop taking the iron supplements.

Further study of her blood and background has identified that an antibiotic may have been signaling for her marrow to stop producing red blood cells. She was born with a duplicated collection system on her right kidney. Two ureters attached to the kidney, where there should have only been one, and the upper pole of the right kidney was developing like a completely separate kidney. During that diagnosis, it was identified that she had a ureter seal, which had to be perforated to allow her bladder to function normally. This surgery was conducted while she was 2-weeks old. Since that surgery, and up until she was about a year and a half old, she was on Bactrim, an antibiotic to prevent kidney infections, if complications arose from the surgery on the ureter seal.

That antibiotic, in combination with too much milk, suppressed her body's ability to produce and absorb iron from her diet.
I'm glad to hear of y'alls good news...hope things only keep getting better for her!
 
Great news! Amen!
 
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