Prayers requested and a little venting

Today went and talked about the treatment. We are going to start with the Folfox again with 2 other things added in. Folfox was tough last time but I made it thru so I have some experience with it. Not sure how the other 2 chems are gonna hit me though. We do this every 2 weeks for 2-3 months and then do a scan to see if it is working.

I am ready to get started but I also am still considering doing the 2nd opinion thing.

This will start up on 11/7/18 and go from there.
 
cmw2212 said:
Today went and talked about the treatment. We are going to start with the Folfox again with 2 other things added in. Folfox was tough last time but I made it thru so I have some experience with it. Not sure how the other 2 chems are gonna hit me though. We do this every 2 weeks for 2-3 months and then do a scan to see if it is working.

I am ready to get started but I also am still considering doing the 2nd opinion thing.

This will start up on 11/7/18 and go from there.
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I'm really sorry you have to go thru this again! I can't imagine doing mine all over. I hope you have good results from the chemo.
A second opinion can't hurt.
 
So it begins. I see a lot of familiar faces. My nurse is the same one who did my first treatment in February of 2017.
 
Praying for you. Being a relatively healthy 60yo through no fault of my own, this thread makes me see how ungrateful a person like me can be for blessings I don't deserve.

Remember, that which doesn't kill you makes you stronger and builds character. You are part of God's plan. Sorry to sound cliché but it's how I feel, and it's true. Hang in there.
 
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This treatment feels stronger than the last one I had and I feel like crap after only 2 days. I am guessing a higher dosage since we are actively fighting the cancer instead of it being a preventative thing.

I have a couple of guns I am considering listing up to help pay some expenses but not sure if I should do it now or wait.
 
cmw2212 said:
This treatment feels stronger than the last one I had and I feel like crap after only 2 days. I am guessing a higher dosage since we are actively fighting the cancer instead of it being a preventative thing.

I have a couple of guns I am considering listing up to help pay some expenses but not sure if I should do it now or wait.
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If you get the mouth soreness, try Italian Ices....they feel so good!! Lol. Or Jello that's made a little "looser" than normal so you can swish it around and cool your mouth off....I made lotsa Jello during my treatment, and sometimes it was all my three meals because it was one thing that didn't make me puke. You probably know about these "remedies" already, though.
I really hope you don't get too crappy-feeling. I know it's brutal. We're praying for you.
 
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Millie said:
If you get the mouth soreness, try Italian Ices....they feel so good!! Lol. Or Jello that's made a little "looser" than normal so you can swish it around and cool your mouth off....I made lotsa Jello during my treatment, and sometimes it was all my three meals because it was one thing that didn't make me puke. You probably know about these "remedies" already, though.
I really hope you don't get too crappy-feeling. I know it's brutal. We're praying for you.
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Thank you for the ideas. I didn't feel so bad last time.
 
Got my call from UNC this morning to schedule the 2nd opinion. First thing they had is 11/26. I will be coming off a treatment then so that should make it fun.
 
Went to UNC Monday for the 2nd opinion. The Dr there is very nice. She had reviewed all of my info and told me that if I had seen her originally she would have followed the same treatments I had done.

We discussed timelines and she said the 2-3 years is just the median timeline for someone diagnosed with stage 4 metastatic colon cancer. She said with my age and the fact I have no other medical issues but the cancer I should be able to make 5 years or maybe more but there are no guarantees.

She also said she is going to follow my case and when the chemo stops being effective that we can look at clinical trials.

So there is no cure, I am still dying but I may get some more time to spend with the family.
 
cmw2212 said:
Went to UNC Monday for the 2nd opinion. The Dr there is very nice. She had reviewed all of my info and told me that if I had seen her originally she would have followed the same treatments I had done.

We discussed timelines and she said the 2-3 years is just the median timeline for someone diagnosed with stage 4 metastatic colon cancer. She said with my age and the fact I have no other medical issues but the cancer I should be able to make 5 years or maybe more but there are no guarantees.

She also said she is going to follow my case and when the chemo stops being effective that we can look at clinical trials.

So there is no cure, I am still dying but I may get some more time to spend with the family.
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I'm sorry you didn't get better news, but it sounds like they're doing everything possible for you, and who knows what better treatments might come along in a couple of years.
Make every minute with your friends and family count!
 
Prayers for you. Keep your head up and continue the fight. I have a boss that has fought colon cancer for going on close to 10 years between first rounds and then finding out his came back. It has been going on 4 years since he found out it came back and continues the treatments and working. He still lives pretty active somewhat normal life other than the weeks he gets treatments which is every 3 weeks at this point. Hopefully they will find a new cure or treatment in next little bit.
 
fishgutzy said:
Prayers out for you and your family.
Thanks god we don't yet have Gov't bureaucrats making treatment decisions.
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Amen to that. I would probably be on the "Take a couple of Tylenol" list.


I am in a little better spirits about the whole situation. I still have my down days but trying to stay positive.
 
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Finished another round of Chemo last Friday. I am feeling a little better now but still not back to normal. We are skipping chemo next week so I can be almost normal over the Christmas holiday. Next Chemo is scheduled for Jan 2nd. Thank you everyone for the prayers and well wishes.
 
Continued prayers coming your way, and I hope you get to have a "normal" holiday and can eat lots of good food!
 
cmw2212 said:
Finished another round of Chemo last Friday. I am feeling a little better now but still not back to normal. We are skipping chemo next week so I can be almost normal over the Christmas holiday. Next Chemo is scheduled for Jan 2nd. Thank you everyone for the prayers and well wishes.
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Praying you enjoy this time with your family to the fullest my friend. You and your family will be on my prayer list.
May the good Lord assure you and yours thru his grace to sustain thru these days. Hang in there my friend.
 
An overdue update.

Christmas was good and I felt pretty good. Did the next round of chemo and had an allergic reaction to one of the drugs I have taken 15 times. They explained it was a build up in my system and is very common.
I had my CT done last week to check the results and I am at the cancer center today doing treatment.
The CT showed the tumor being a little smaller so something is working.
I want to thank everyone for all of the prayers. I truly believe prayer works and I am appreciative of the support I get from you guys.
 
Saw you comment in the chat box about getting results and said a little prayer that it would be good news for you. Glad that it was. Hope you continue to improve.
 
I don't know how I missed this post. I will add you to my prayer list, I absolutely believe in the power of prayer. I know that God has the power to heal all. Hope you continue to get positive news.
 
Jesus loves you and your family ! I truly wish all of you to draw closer to each other and to Him during this. Prayers sent for all of you right now.
BTW, my daughter is enjoying that AR we traded over. I hope you're still liking the G27.
 
3/7/19 Another update. I am currently fighting a cold or something with members of my family having pneumonia or strep throat. Hospital visit 2 weeks ago showed the tumor is getting smaller still so something is working. They are unsure of what caused the severe pain but all the tests came back good. Did chemo last week and don't feel too bad besides the cough. Supposed to do chemo next week which will be #8.
 
I imagine you feel like s#!^, sorry to hear that part. But glad to know things are moving in a good direction. Hang on, be strong, will keep you in the prayer pile.
 
My prayer for you and your family...

Psalm 91
1 Whoever dwells in the shelter of the Most High
will rest in the shadow of the Almighty.
2 I will say of the Lord, “He is my refuge and my fortress,
my God, in whom I trust.”
 
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"Is any sick among you? let him call for the elders of the church; and let them pray over him, anointing him with oil in the name of the Lord:
"And the prayer of faith shall save the sick, and the Lord shall raise him up; and if he have committed sins, they shall be forgiven him.
"Confess your faults one to another, and pray one for another, that ye may be healed. The effectual fervent prayer of a righteous man availeth much."

~ James 5:14-16
 
Wanted to give everyone a quick update.

If my math is correct I have one more treatment for this cycle which will be next week. After that we need another CT and I have an appointment at UNC for June 26th to meet the surgeon and oncologist to discuss the next course of treatments. This one has been tough but better than the alternative.
 
cmw2212 said:
Wanted to give everyone a quick update.

If my math is correct I have one more treatment for this cycle which will be next week. After that we need another CT and I have an appointment at UNC for June 26th to meet the surgeon and oncologist to discuss the next course of treatments. This one has been tough but better than the alternative.
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I hope your tests give good results, I know you're having a tough time.
 
Edited,

Old post did not read the time stamp

Sorry

Great job on fighting through!
 
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Update, 6/27/19.

Went to UNC and talked to the surgeon. I currently have a blood clot in my splenic vein. I didn't think it was a huge deal until the surgeon told me that is the only thing that causes her anxiety over a patient and that 2/3 of the blood flow to my liver is cut off. She told me to look for yellow eyes and dark colored urine just in case my liver decides to give up.

We discussed treatment and surgery. I have to do another colonoscopy, genetic testing, more imaging and they want to put a camera in my chest to actually take a look at the tumors.

Currently the treatment plan they are recommending is 4 more cycles of chemo to make it 12 total which should put me somewhere near November. Then I have to be off chemo for 6 weeks before we can do surgery.
 
Minor update.

After talking to my oncologist here the surgeon called him on vacation to discuss my case and they decided on 4 more treatments and then the colonoscopy. That puts me in September to see the surgeon at UNC again.

Thank you everyone for the prayers and well wishes.
 
Update 9/23/19

Went to UNC to see the surgeon again. I still have a bloodclot in my splenic vein so she is sending me to a specialist in Wake Forest for another opinion. Chemo has really sapped my endurance but I have been off chemo for almost a month now and at times I am feeling a little better.
 
cmw2212 said:
Update 9/23/19

Went to UNC to see the surgeon again. I still have a bloodclot in my splenic vein so she is sending me to a specialist in Wake Forest for another opinion. Chemo has really sapped my endurance but I have been off chemo for almost a month now and at times I am feeling a little better.
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I'm glad you're feeling better, but sorry you still have some issues....I hope for good reports from the docs.
 
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