Hoping for the best for you and your family. I know we struggled with a couple issues prior to the birth of my daughter. The wife went in for a kidney stone, which prompted an ultrasound to check on our daughter to see if everything was ok. Voids were spotted on her right kidney.
Doctors originally thought she had a polycystic kidney, which could require surgery, or would not continue to develop. I know you can live with one kidney, but you also have to watch medications so you don't destroy the one you have. Went in for check ups and additional ultrasounds every 4-6 weeks.
Immediately after birth they did an additional ultrasound and identified that she had a duplicated collection system (extra ureter) attached to an additional upper pole (like a double kidney on the right side). So the initial diagnosis was completely incorrect, but they also identified that she had a uretercele that needed to be addressed. At two weeks old she was placed under anesthesia to have the uretercele perforated. Being at UNC's children's hospital is a tough place to be. I know we were blessed to have something so minor and correctable, but it was still a challenge to have no control over the outcome.
A year's worth of terrible VCUG testing occurred after the surgery to ensure there was no reflux from the bladder to the kidney. It's hard to watch your child scream in pain, knowing it's for their own good, and worse yet that you can't explain to them what is going on.
She's now a healthy and happy, normal 2.5 year old that loves Paw Patrol and throws terrible tantrums.
I know things look tough now, but kids are very resilient.